News Summary

Nolan Ward, a 14-year-old from Eyota, Minnesota, is set to run in the 49th Grandma’s Marathon on June 21. Despite facing significant medical challenges due to a rare condition, he has achieved remarkable athletic success. His journey reflects resilience and determination as he aims to finish his first full marathon in under three hours, inspiring many with his story of courage and community support.

Eyota’s Young Marathoner Takes on Grandma’s Marathon

Nolan Ward, a remarkable 14-year-old from Eyota, Minnesota, is about to make history as he gears up to compete in the 49th Grandma’s Marathon taking place on June 21. Currently in eighth grade, Nolan is no stranger to running, having already represented Dover-Eyota High School on both the cross country and track teams. As he approaches his 15th birthday just days before the marathon, he will be one of the youngest participants in this iconic event.

A Rare Strength

Nolan’s journey to this marathon is nothing short of incredible. He is one of only 50 children worldwide diagnosed with deficiency of the interleukin-1-receptor antagonist (DIRA), a complex autoinflammatory disease that affects his body’s immune response. Nolan’s mother, Jamie Ward, explains that his genetic condition leaves him without a critical protein, resulting in his body attacking itself, leading to a variety of health issues.

From birth, Nolan faced significant medical challenges. He dealt with bone lesions, swelling, fevers, rashes, and even a blood clot in his neck. His first few months of life were a medical mystery, undergoing various complex treatments such as spinal taps and blood transfusions. Everything changed when doctors connected the dots with another child in Canada suffering from similar symptoms, ultimately leading to Nolan’s diagnosis.

Pushing Through Adversity

Thanks to innovative treatments, including the medication Anakinra, Nolan’s condition has become more manageable. He also participates in a drug trial at the National Institutes of Health (NIH), which has successfully reduced his injection frequency from daily to weekly since he was four. In addition, Nolan has a small kidney due to DIRA and adheres to a strict diet to maintain his health. He avoids protein drinks and keeps hydration a top priority.

Running Towards a Goal

Nolan is not just navigating his medical challenges; he has made a name for himself as an athlete. He has previously completed three half marathons, exhibiting dedication and a love for running that started with his first Eyota Days 5K at age 12. Nolan’s participation in Grandma’s Marathon will mark his first full marathon, and he has set an ambitious goal to finish under three hours, but he would be thrilled with a time beneath 3:15.

Building a Bright Future

At the varsity level in both cross country and track and field, Nolan competes in a variety of events, including the 800, 1,600, and 3,200 meters, alongside multiple relay races. The excitement of competing is matched only by the camaraderie he feels with fellow runners and the supportive spectators who cheer them on.

Running provides Nolan with a much-needed mental escape from the difficulties posed by DIRA, as he often deals with joint pain and swelling. As he looks toward his future, both Nolan and Jamie harbor dreams of him running at the collegiate level, showcasing not just his athleticism but his incredible resilience.

A Testament to Courage

When you speak to Jamie, her pride in Nolan’s achievements and his bravery shines brightly. She considers him one of the bravest kids around, a testament to his perseverance and spirit. Nolan’s story is a heartwarming reminder of the strength of the human spirit and the power of community support as he prepares to take on Grandma’s Marathon.

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